Did you see the BBC news yesterday?
For me and my sister this is life changing.
I am SO excited.
Coincidently, Mark went on a pension planning course last Thursday and we were just starting to consider how we would deal with the 50/50 chance of me having HD that starts to show at 60. Mark is only three months older than me so we would both take a large hit if we pulled pensions down early. However, if we can make it to 67, we'll be masses better off than we are now. Crazy. However, seven years of HD does a lot of damage, so Mark would have wanted to take the hit and spend the time doing nice stuff with me.
Now we the prospect of choices. Treatment's not the nicest of procedures but it keeps a lot of much more horrible stuff at bay. I can see a future where I can manage my HD (if it develops) and we can still do the walking breaks and motor sport stuff that we love. I hope that I'll be able to continue playing and teaching for as long as people enjoy learning from me.
This is an immense moment.........